Sunday, April 10, 2011

I could be in my own Cymbalta ad

Sometimes I feel so alone. The stress and anxiety that these headaches overwhelm me. I can't take care of my family like I should. I get to the point where I just don;t think there will ever be a solution to my problem.

Wednesday, April 6, 2011

Nerve Block #11...this is not a fun party

They keep telling me that the blocks areworking. I don't think that they are in my head. They don't fully understand the fact that the blocks that they keep giving me in my neck has taken away my neck pain and back part of brain pain(good grief that sounded so uneducated-sorry, I am tired and pissed now). I am SO SURE! BUNCH OF GOOBERS!I really feel like a pin-cushion between the blocks and the 37 injection sites of BOTOXa couple of weeks ago. The jury is still out on that one. As for the block, myneck doesn't presently hurt. All the pain in the entire world has found it's way to my frontal lobe. I am trying imitrex for bazillionth time. I am aware of the bad side-affects thatcome with that drug when I usually use it. I don't care anymore how bad they are! Bring it-iet's see what you've got!!

Plus, the cherry on the top of this turd sundae is the fact that breakthru meds that the pn clinic wrote for me last was lortab. First, that is not touching my pain and it rebounds on me horribly. This is why I only want to see one pain management specialist. Someone that just doesn't look at me and say"Well, I know what I am going to write for you. I bet you that you won't even need them with the new extended release med that I wrote." She wrote EXALGO 8mg. From what I have read, this is a super low dose. I am going to bash my head now!

That's enough now. Stop whining! At least, I am sending this out where none of my normal, non-headachy,happy would ever find it! It is kina freeing to begin to just lay it all out there for all cyber world to see and I don't even have to listen to any stupid story from a well-meaning person who just asks about my headaches in public. I save the "Oh, I am doing great-miracle treatment from magical goat feces. Good luck finding any!

Tuesday, March 29, 2011

Embeda recall

So, I went to the pharmacy last week to fill a script of Embeda and it had been recalled. It would have been no big deal, but the pain clinic wouldn't replace it with anything until I came back in. So, I get to drive 2 hours again tomorrow to get a new med. So so so frustrating!

Monday, March 28, 2011

Botox and the Blues

I have been such a slacker with this blog. Sometimes I feel like laying it all out there for the world to read(if they found it!) means that the pain is winning. I don't like the person that I have become. I have always been the fun, quick with a quip or comeback, sassy girl. More and more, that person seems to be disappearing. It is like my best friend has moved a million miles away and refuses to communicate with me!

I have to say that the brightest spot in the last week has been reading Chocolate and Vicodin. I told my hubby that I feel like the author is inside my head! Strangely, we have gone through so much of the same treatments and procedures. I hate to laugh at her eagerness before "the next great cure" but I have been there and back many times over. It is a great read for anyone with headaches or chronic pain, or for that matter, their friends or loved ones. So refreshing a read! I know that this sounds ridiculous considering it is her day to day, doctor and quack memoir about living with chronic, unrelenting headache pain. I personally have chronic daily headaches and migraines and know what it is like to be the headache chick! Thank you, thank you for a great book that I can recommend to all the headache friends and those who love them and want to understand what we go through!!


Well, my insurance company finally paid for Botox. I had it done last week. No relief yet. At least that's something else to check off my list.

There have been lots and varied nerve blocks done over the last few months and med changes galore. I will try to tackle them next time!

Saturday, February 5, 2011

another block

I have not posted in quite a time. Holidays and headaches can really make for some bad times for me.

I am going through rounds of blocks in hope of riding myself of all headaches. The blocks that were done in the first 2 rounds have been helpful. Now, I am feeling the headaches at the front of my head. Those have always been there, just not as bad as the headaches that I would feel at the base of my skull and down my neck. The blocks there are working for now. I wont be picky. There is intermittent pain back there, just nothing like it was before. NOw...on to this week

They describe it as ticks and fleas at the pain clinic. First, you get rid of fleas, then you have to get rid of the ticks. So, I guess we are fine tuning the pain now. The headache pain upfront has almost gotten unbearable. They have kept me almost constantly bedridden. So, we tried a new approach. They have stopped working across my neck and the base of my brain. The doc did a new to me block for the front a couple of days ago. I made the ultimate mistake and watched this procedure on YouTube. First of all, the video looked like it was made in like 1987. His block was done through the nose. gag!!! I was so scare going in, that I called and had nurse talk me through it in detail. It was performed by going in right in front of my left ear. They started with the left side, because it is the area of most pain.The block that was given is called sphenopalatine ganglion block.I am finding it hard to find good info about in on the web. Presently, I don't have any headache pain,, but it could be masked by the pain at the injection site.

Wish me luck, I have at least 2 more on the left side and then how many they decide for the right. My face swelling on the left side kinda makes me look like a confused squirrel storing muts only in one cheek! Let's just hope this works.

hoping to be painfree- Angie

Thursday, September 30, 2010

more light at the end of the tunnell.

Checked in with the pain clinic yesterday. Progress good. I still feel like I have a sunburn on my neck... the stigma of being a TN redneck that I have tried to run from for years! The actual needle holes are still sore to the touch and I feel like I have a hunchback. I don't- i checked. It is just sore in the area.

I have had quite a few days of no headaches. That is such a total blessing and gift from God. William says it is like he is getting his old wife back.

Thursday, September 23, 2010

still sore

If I didn't know it, I would think that someone shoved an ice pick in my neck a few times. The pain is still there and curiously it feels like I have a sunburn there. The nurse told me to expect that and other wierd things. come on, already I want to see if this is going to work!